Overcoming Shyness & Loving Lynn - A Memoir

Chapter 34: Lynn Might Not Come Back To Me! Cystic Fibrosis And Death

It had seemed that cystic fibrosis was about to destroy my entire life, as well as threaten the life of the woman I loved. I feel selfish to say that it was destroying my life. I cannot say that I was dying, not literally. I felt survivor's guilt because of this fact. I felt I didn't have a right to speak about how I was experiencing all of this. That might be part of the reason why I didn't reach out to friends and say, "I need your help" or "I need your support." or "I need to talk."

Lynn had known the devastating pain this would cause me. I just had a hard time thinking about "me." It's ironic that by not focusing on how this was affecting me, I didn't appreciate that this was an emotional, psychological and existential crisis for me.

To be honest, it happened too fast for me to get in to see a psychotherapist or a doctor for help to deal with this. If I had a physical sickness, I would have called my doctor and gotten an appointment in a day or so, maybe a week. With a psychological crisis or sickness that comes on so quickly, we don't think in terms of emergencies that must be addressed immediately.

I was like a walking zombie without Lynn.

She was now staying at her mother's place in Wilmington, the place on Wrightsville Beach.

I was beating up on myself for not keeping the place clean enough for Lynn to feel comfortable living in our home... but in reality, there was more to the story of why Lynn was living with her mother.

I was reflecting on the entire month that and what had happened.

We had two cats and they used the litter box in the garage. Sometimes I would forget to clean that also or before she went into the hospital the second time, I didn't want to do it myself. I had been in denial and struggling to admit to the fact that she could not do the things she used to be able to do.

Every little failure or thing I forgot to do made me feel ashamed. I hadn't been stubbornly refusing to do these things. I hadn't been angry at Lynn for not helping with any of these chores that would have been shared in the past. No, I just was in denial of what was happening and what her inability to do certain things meant.

It might have seemed like an easy calculation, that cleaning the home and doing other things to make it more likely that Lynn could come home is the most obvious thing for me to do but that just wasn't registering as something that was so obvious. Plus, I was terrified that Lynn might die. I kept pushing that thought away. In so doing, I was pushing a part of my reality out of my mind.

My normal capacity for planning and problem solving wasn't working at peak levels, to put it mildly. All the resources within me that had served me and guided me throughout the years were non-functional at this time. It seemed like those faculties had shut down.

We all need help at times in our lives - a supportive person like a therapist, friend, family member.

Dear reader, you might wonder why I could not offer myself the same support and guidance that I might offer a client. You might wonder why I couldn't draw upon my own skills. Up until this point in my life, I would have been able to step back, plan, figure out what I need to do, and then do it.

I would have done something.

I cannot overstate this fact, but I would have done anything imaginable to hold onto the life I had with Lynn – to hold onto any life with Lynn!

We were still in the month of August of 2000.

Clients depended upon me also.

Despite the grievances of those five clients, I had dozens of other clients whose therapy was going along well and things were fairly "normal" in that regard. I felt a responsibility to try to help them.

I couldn't just wallow in the grief and pain of losing Lynn forever. I also didn't know what to expect regarding Lynn's health. I felt powerless to help her so I didn't know what to do.

I had developed a coping mechanism to deal with the issues of being in love with someone who had a terminal disease called cystic fibrosis. I (or maybe we) had lived life as they say "in-the-moment." What else can you do? I mean, whether you are talking about Lynn who had lived with this her whole life all those years before she met me or if you are talking about me knowing in some way that I might not have Lynn forever, we both had to focus on what we had.

That strategy might make the best sense in a way, but it can also lead to denial. I know that this is what I was experiencing in August of 2000. In essence, it was like telling myself "This isn't happening. Everything is fine." But things were not fine. Lynn needed me and I wasn't giving her any sense that I could be there for her.

I wanted and needed to believe that the situation with Lynn living with her mother was temporary. Lynn's mother, Diane had separated from her husband, Bob, and was living down in Wilmington all the time. She had gotten a job as a psychologist in one of the schools.

On about the fourth of September of 2000, I heard Lynn tell me that she might not come back to me. I couldn't even begin to have a "logical" conversation about this because I broke down and started crying.

I was moving through life on autopilot.

I was in denial when I heard those words from Lynn that she might not come back. I thought, "this is not happening."

This is not happening. I could not wrap my mind around the reality of what I was hearing.

I reflected upon the weeks and months before the nightmare had started.

Just a few weeks earlier life had seemed so "normal." We were so in love. I had felt her body next to mine and knew that the love, passion, and romance had not faded at all in all the years we were together. If anything, it had only grown.

We had been so close just weeks earlier. Falling asleep with my arms around her. My heart and breathing synchronized with hers. I had felt such a sense of serenity as she drifted off to sleep. I tried desperately to hold onto that memory and that peace, but I couldn't.

My mind kept trying to conjure imagines and memories of this serenity of falling asleep, our bodies touching... the image of both of us facing the front window in the bedroom.

Her heartbeat and breathing slowed little by little as she transitioned into sleep. That was just a few weeks ago but it felt like the day before.

It might have been the day before but for her disease - cystic fibrosis.

There were other things that were happening in my life, but I was so consumed by the changes in Lynn's health that I could not function as I once had. I had tried to go on coping and working but things were different now.