Disclaimer: I am still researching what it is and what it is like having it, I am in no way saying that I definitely have it as I am undiagnosed, I am not trying to spread misinformation so if a professional or someone who is diagnosed thinks anything I'm saying is wrong please tell me.
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First off, here's the definition copy pasted of google: Ehlers-Danlos syndromes are a group of conditions that cause very flexible joints and stretchy and fragile skin.
Common symptoms of Ehlers-Danlos syndromes include unusually flexible joints and skin that stretches and breaks easily.
There's no cure for Ehlers-Danlos syndromes. But support from professionals like physiotherapists can help you manage your symptoms.
Ehlers-Danlos syndromes are often inherited from your parents.
Me and my family are beginning to think that there is a possibility that I have hEDS (hypermobile Ehlers-Danlos syndrome, the most common type of EDS), there are alot of reasons for this, the first reason is my hypermobility, I have mentioned it in the past but basically I am very flexible because my joints are weird.
Another thing is I have always experience a lot of pain, as a naive child who never fit in with the rest of the world, I assumed that everything that ever made me different was actually completely normal and I was just worse at hiding it then everyone else because I didn't understand that that's not how people work, so I ended up hiding my entire personality and every single thing that I struggled with daily from everyone who didn't experience it firsthand or at least see it. Also, I think the only time I did complain about the pain was after P.E. or during long walks which is when it was almost impossible to ignore and the adults around me would simply say something along the lines of "exercise usually does hurt" so I assumed that meant "yes, it is completely normal to experience excruciating pain everytime you go for a walk along the beach with your family."
Anyway, lately the pain has gotten alot worse since I haven't been sitting down as much as I used to. Some things I struggle with a lot more then others are stairs and standing for certain periods of time but even sitting down can be painful, in fact as I'm typing this I'm sitting down and my thighs hurt alot because a few minutes ago I did the dishes which hurt and I'm not really sitting in a comfortable position but who cares? Lol.
Anyway, the easiest example I could get of my hypermobility is my right thumb being weird, I can also wrap my legs around the back of my head and do a bunch of other stuff but I'm not putting pictures of that because that would include showing my face and just no.
Don't worry, it doesn't hurt, it just looks weird.
Also, if you're wondering why hypermobility would cause pain hypermobility can be caused by joint instability which is where your bones aren't really connected the way they're meant to and they're really loose so basically what I'm saying is I probably have loose bones.
And if you're wondering how I came to the conclusion of hEDS basically I went to the doctors about the pain because it hurts and at first they thought I have this thing where your leg muscles swell up I think and honestly no one believed them because they also said it's common that when it develops at my age it's developing in a very active kid and I am not active so now I'm gonna start going to physiotherapy to see if that helps and the reason why I god the idea of EDS is because my mum was talking with her friend who worked with disabled and neurodivergent kids but was forced to quit because it was bad for her mental health (long and personal story, I don't even know all the details) said that I might have EDS.
Anyway, I'm not sure what's gonna happen but if physiotherapy doesn't work I could end up needing (a) mobility aid(s) but I'm pretty sure I'm OK with that because of multiple reasons.
1: disabled community
2: alternative community
3: sun spider, Charlotte Webber
And 4: Jessica Kellgren-Fozard
So, uhm, yeah, representation and community are important, guys! They make you feel OK and prepared with possibly needing mobility aids.
Anyway I don't have anything else to say about this other then that it is just a possibility, I'm not diagnosed so I'm just gonna publish this and then go on with life and see what happens.