a Special Kind of Bird

Author's Note "Myself"

May 30, 2020

Beautiful readers,

here is an update from myself, I'm usually a very private person

only when I'm here, I feel the need to open up about my life.

As you might know I have been sick 

with a bacterial infection in my left leg,

it also affected both my feet, there were all swollen up,

the medicine to beat this worked just fine,

I had a lot of pain however my leg and feet were healing 

until..................

I lost the feeling in my right foot, 

the strength to walk and to stand on it wasn't working 

but at the same time I felt a burning and a stabbing sensation inside

so I went to the doctor who also didn't trust it 

and after some blood work 

I ended up.....................

in the hospital, for a week!!!

OMG, this was definitely NOT in my plans, 

my family and I already had a tough time behind us 

since my brother was diagnosed with cancer last December, 

he is not out of the woods yet but he is getting better slowly 

and now here I am,

just a week out of the hospital with a diagnose,

Eosinophilic granulomatosis with polyangiitis (EGPA), 

formerly known as the Churg-Strauss syndrom.

It's an extremely rare autoimmune condition that causes

inflammation of small and medium-sized blood vessels (vasculitis).

At this point my heart, lungs and legs are infected.

I have never seen so much doctors, I have never been 

through so many examines, drawn so many blood work 

and had two Covid19 tests (both negative by the way) 

in that week when I was in the hospital. 

However if I hadn't been there, they would be probably guessing 

still right now which disease I could have and now I know. 

I am still experiencing numbness and pain in my right foot, 

haven't still gotten back the strenght and that worries me a bit, 

I am also dead tired and have to take it all in what this disease 

means to me, what it means for my future. 

With the right medicines I will be hopefully alright in the long run.

So grateful for all the people in the hospital 

who did everything in their power to help me 

and it almost made me feel like home when I was in there, 

they are my heroes!

As you can imagine my head is a bit occupied 

at the moment with a lot of things.

All I can say is, when you experience the last months we have had 

and we are still living it, 

you understand what really is important in life,

your loved ones!

It's still hard to concentrate on writing but I love it so much.

Every day I will try to write on my stories,

it will take a bit longer however I have, again, 

every intend to update and eventually finish!!

This author's note will be placed in every EK story I write as a chapter

so for the one's who read all 5, sorry for the spam.

And here I go again, I can't tell you enough how much

I appreciate that you are reading my stories, 

that you are following, voting and leaving comments. 

You, beautiful reader, are also my medicine to heal❤